Our lives do not fit a conventional narrative
"Ms Thomas' parents helped her through the dark times and together they set up 'The Girl Behind The Face' Facebook page in an attempt to help educate people on the disorder." Daily Mail
Mui says: Our family initiative, The Girl Behind The Face, is about standing up for others. It was originally set up by my parents to help me. They are the ones who run it and I’m happy and excited to be a part of it. I see myself as the poster girl who just enjoys getting out there and doing things. To paraphrase our upcoming book: “Sharing our story is our response to the cyber bullies who taunted me to kill myself.”
Tina Thomas, S.A.C. Dip. (Child Psychology), S.A.C. Dip. (Advanced Psychotherapy), S.A.C. Dip. (Special Educational Needs)
Rog Thomas, BSc. Applied Economics, S.A.C. Dip. (Child Psychology)
Mui Thomas, Rugby Referee, Yoga teacher
Rog Thomas, BSc. Applied Economics, S.A.C. Dip. (Child Psychology)
Mui Thomas, Rugby Referee, Yoga teacher
“We were told our daughter would be better off dead.”
Mui is the world’s first rugby referee and yoga teacher with Harlequin Ichthyosis. She is part of the first generation of survivors, and is the fourth oldest survivor with her disease. Mui is twenty-eight years old.
An unusual appearance, ichthyosis, abandonment, High-functioning Autism Spectrum Disorder (ASD), Pathological Demand Avoidance (PDA ), Reactive Attachment Disorder (RAD), Attention Deficit Disorder (ADD), can destroy a person and a family.
