The family doctor said:
"Don’t love this baby, Tina, she’ll break your heart.
Forget about her
and make a baby with Rog."
"Don’t love this baby, Tina, she’ll break your heart.
Forget about her
and make a baby with Rog."
A little about who we are
Tina and Rog...
did not want to start a family,
did not want to adopt a child,
did not want to have a child with a disability;
they did not even want to stay in Hong Kong.
Mui’s rage led Tina, a 26-year-old Anglo-German, to give up her dream, her job, her career and narrow her focus to challenge stereotypes and society that labelled and rejected a little girl born with an unusual appearance and prognosis: “death in infancy”.
Tina & Rog were told Mui would be better off dead.
Mui is now a woman, a yoga instructor and the world’s first rugby referee with Harlequin Ichthyosis.
did not want to start a family,
did not want to adopt a child,
did not want to have a child with a disability;
they did not even want to stay in Hong Kong.
Mui’s rage led Tina, a 26-year-old Anglo-German, to give up her dream, her job, her career and narrow her focus to challenge stereotypes and society that labelled and rejected a little girl born with an unusual appearance and prognosis: “death in infancy”.
Tina & Rog were told Mui would be better off dead.
Mui is now a woman, a yoga instructor and the world’s first rugby referee with Harlequin Ichthyosis.
Mui says: “I am the poster girl for what happens when strangers stand up for someone else.”
Tina Thomas: S.A.C. Dip. (Child Psychology)
S.A.C. Dip. (Advanced Psychotherapy)
S.A.C. Dip. (Special Educational Needs)
Diploma (Post Traumatic Stress Disorder)
S.A.C. Dip. (Drama in Education)
S.A.C. Dip. (Early Learning & Childcare)
Level 3 Certificate Sociology
Rog Thomas: BSc. Applied Economics
S.A.C. Dip. (Child Psychology)
Mui Thomas: Rugby Referee
Yoga teacher
S.A.C. Dip. (Advanced Psychotherapy)
S.A.C. Dip. (Special Educational Needs)
Diploma (Post Traumatic Stress Disorder)
S.A.C. Dip. (Drama in Education)
S.A.C. Dip. (Early Learning & Childcare)
Level 3 Certificate Sociology
Rog Thomas: BSc. Applied Economics
S.A.C. Dip. (Child Psychology)
Mui Thomas: Rugby Referee
Yoga teacher
Mui says: "I am not The Girl Behind The Face"
The initiative was originally set up by Tina & Rog to help Mui.
Tina & Rog run it
Mui is happy and excited to be a part of it.
The initiative was originally set up by Tina & Rog to help Mui.
Tina & Rog run it
Mui is happy and excited to be a part of it.
Our family initiative is about challenging assumptions & standing up for others.
We emphasize a hands-on, person-to-person contribution, to remind others that they are not alone.
An unusual appearance, ichthyosis, abandonment, High-functioning Autism Spectrum Disorder (ASD), Pathological Demand Avoidance (PDA ), Reactive Attachment Disorder (RAD), Attention Deficit Disorder (ADD), can destroy a person and a family.
"Ms Thomas' parents helped her through the dark times and together they set up 'The Girl Behind The Face' Facebook page in an attempt to help educate people on the disorder." Daily Mail
Mui is the world’s first rugby referee and yoga teacher with Harlequin Ichthyosis. She is part of the first generation of survivors, and is the fourth oldest survivor with her disease. Mui is 30 years old. in 2016 Mui won the Spirit of Hong Kong Award.
