"We are so seldom told the truth."
Media quotes frequently highlight the challenges we face when trying to tell the truth.
Media quotes frequently highlight the challenges we face when trying to tell the truth.
Sharing our story is our response to the cyberbullies who taunted our daughter to kill herself.
Mui is not a “one factor” explanation
The Girl Behind The Face is a global initiative set up by Tina and Rog Thomas dedicated to Inclusion, Diversity and standing up for others. It is creating awareness of cyberbullying, mental health, Autism Spectrum and visible difference.
The common denominator is Adverse Childhood Experiences
Our past is why we stood up to fight for Mui, and why we have our initiative. We are happy, too, that Mui continues to stay involved.
The common denominator is Adverse Childhood Experiences
Our past is why we stood up to fight for Mui, and why we have our initiative. We are happy, too, that Mui continues to stay involved.
What makes a 26 year old woman, the granddaughter of a Holocaust survivor who was driven to a teenage breakdown give up her dream, her job, her career and narrow her focus to challenge stereotypes and society that labels and rejects a little girl born with a different skin and with the prognosis: “death in infancy”?
And what happens as that abandoned little girl with an unusual appearance grows up and becomes a woman, and becomes a yoga instructor and the world's first rugby referee with Harlequin Ichthyosis as well as an Asia Rugby Unstoppable Ambassador?
And what happens as that abandoned little girl with an unusual appearance grows up and becomes a woman, and becomes a yoga instructor and the world's first rugby referee with Harlequin Ichthyosis as well as an Asia Rugby Unstoppable Ambassador?
"Ms Thomas' parents helped her through the dark times and together they set up 'The Girl Behind The Face' Facebook page in an attempt to help educate people on the disorder." Daily Mail
Mui says: Our family initiative, The Girl Behind The Face, is about standing up for others. It was originally set up by my parents to help me. They are the ones who run it and I’m happy and excited to be a part of it. I see myself as the poster girl who just enjoys getting out there and doing things. To paraphrase our upcoming book: “Sharing our story is our response to the cyber bullies who taunted me to kill myself.”
Tina Thomas, S.A.C. Dip. (Child Psychology), S.A.C. Dip. (Advanced Psychotherapy), S.A.C. Dip. (Special Educational Needs)
Rog Thomas, BSc. Applied Economics, S.A.C. Dip. (Child Psychology)
Mui Thomas, Rugby Referee, Yoga teacher
Rog Thomas, BSc. Applied Economics, S.A.C. Dip. (Child Psychology)
Mui Thomas, Rugby Referee, Yoga teacher
“We were told our daughter would be better off dead.”
Mui is the world’s first rugby referee and yoga teacher with Harlequin Ichthyosis. She is part of the first generation of survivors, and is the fourth oldest survivor with her disease. Mui is twenty-eight years old.
An unusual appearance, ichthyosis, abandonment, High-functioning Autism Spectrum Disorder (ASD), Pathological Demand Avoidance (PDA ), Reactive Attachment Disorder (RAD), Attention Deficit Disorder (ADD), can destroy a person and a family.
